The CONSUMER
CONCERNS
REPORT can
•
Involve your consumers in
identifying and prioritizing their issues
• Reach out to new people with
disabilities in your service areat
• Help your consumers to organize
the disability communityt
• Produce data to support grant
requests, fund raising efforts,
• and substantiate the need for
changes to decision makers.
The Consumer
Concerns Report Method goes beyond the usual needs assessment survey
to become an organizing tool. A working group of consumers designs
the survey instrument, consumers respond on the survey to identify
and prioritize issues important to them, and public forums are held
for consumers to organize around the issues they
identified.
The consumers involved in the working group discover that, although
they have different disabilities, they also have a lot in common.
They also discover, by listening to others in the group,
disability-specific issues they didn’t understood before, and start
supporting each others’ issues. The Consumer Concerns Report is more
than needs assessment, more than a satisfaction survey - it is a
tool for productive consumer involvement.
The Consumer Concerns Report was used by the Research and Training
Center on Independent Living at the University of Kansas around 1980
to identify and prioritize the concerns of people with disabilities.

The map the right
shows the 8 statewide and over 30 local applications
conducted by the RTC/IL. Their collective archived data,
as of 1989, was distributed to Congress to support passage of the
ADA. Barrier Breakers has since done 6 local applications,
including 3 in cooperation with the American Indian Rehabilitation
Research and Training Center at Northern Arizona University, and is
currently conducting two local and one statewide applications. The
project takes 6 - 8 months to complete, and will involve some
staff time and Center resources in organizing and conducting
meetings, and in printing, sending out, and getting back surveys.
Barrier Breakers charge is negotiable, from $500 for a really
small CIL to $3,000 for a statewide application, and fifty cents per
survey data entry charge. Barrier Breakers provides instructional
materials, consultation, survey design based on information from
consumer working group meetings, and conducts data entry and
analysis. I believed in this project when I did it ten years ago at
KU, and five years ago on my own, and I believe in it now.